Fragile X Syndrome: From Genetics to Targeted Treatment Fragile X Syndrome: From Genetics to Targeted Treatment provides a structured overview of the molecular and clinical background of the disorder as well as treatment options. The book discusses the detailed molecular information on each of the pathways involved with sufficient details for all whose research touches … Leggi tutto
Growing Up with Fragile X Syndrome – The Road to Marty Campbell Dr Robyn Iredale Vivid Publishing, 2011 This book provides a personal insight into the many challenges of bringing up a young man with Fragile X syndrome and also a message of hope for all parents and professionals involved with the syndrome.
X Stories – The Personal Side of Fragile X Syndrome Charles Luckman & Paul Piper Flying Trout Press, 2006 A book of stories from people who have been touched by fragile X who tell in their own words how it has transformed their lives. Stories about family life before and right after diagnosis and stories … Leggi tutto
My Extra Special Brother: How to Love, Understand, and Celebrate Your Sibling with Special Needs Autore: Carly Heyman Fragile X Association of GA, 2003 Sixteen-year-old Carly Heyman writes an endearing story of growing up with her big brother Scott, a young man who has a sweet smile, a courageous heart, and fragile X syndrome A … Leggi tutto
Fragile X Syndrome: A Guide for Teachers Autore: Suzanne Saunders This English book, by a lecturer in Special Education at Oxford, gives a comprehensive coverage of issues which arise when children with Fragile X syndrome go to school. Optimum classroom conditions and teaching strategies are discussed, as well as social and behavioural development.
Fragile X syndrome : diagnosis, treatment, and research Randi Jenssen Hagerman; Paul J Hagerman This superb book is a must for the professional with any interest in fragile X syndrome. Topics covered in the first part of the book include epidemiology and the associated cytogenic and molecular findings, present research regarding protein studies and neuropsychology … Leggi tutto
Children with Fragile X Syndrome: A Parent’s Guide Jayne Dixon Weber Written by leading practitioners and parents for families, teachers and other professionals working with children with fragile X syndrome. Up-to-date information helps families adjust and understand their child’s strengths and weaknesses. It includes some useful chapters on parental emotions, family life, diagnosis, genetics, education
Fragile: Handle with care: understanding fragile X syndrome Braden Marcia Published by Spectra Pub. Co, 2000 This is an exceptional book written by a master in the field of special education and behavioural psychology
Fragile X Fragile Hope: Finding Joy In Parenting A Child with Special Needs Elizabeth Griffin This is a publication by Elizabeth Griffin, who has a son with fragile X and autism. Many negative aspects of the journey from diagnosis to acceptance, such as chronic stress, sleep deprivation and the hurtful lack of awareness exhibited by … Leggi tutto
The Broken Toy Marilyn Morgan This short book tells the story of a mother’s fight to gain the best for her son with fx. Dan was born in 1977 and the book takes us through the various stages of his life and an honest picture at the end of a young man who has achieved … Leggi tutto